An Update on Katia

Following our last post, life with Katia has been a whirlwind! 

At our latest appointment her prescription was changed from +19 to +18 and I remain hopeful. 

She has also started walking! OH MY! She used to crash into everything and walk on her tip toes, so we ordered her first pair of glasses for protection. We have still been patching for 4 hours a day and although, as the days go by it gets a little harder we continue to work toward those 4 hours. 

Katia has learned that if she rips her patch off and sticks in her mouth to get it gooey, we can’t stick it back on!! 

She has also learned to throw things away. Like I said, life with Katia is truly a surprise. She has reached all her milestones and loves to read! 

Despite the fear of living each day wondering how much vision she will get back I know that she is a relentless, smart, vivacious little babe who will conquer anything that is put her way. I do not feel like her vision has affected much of her life, as this is what she knows. She eats (PLENTY), she walks, tries to run and can communicate (especially when she’s hungry) without any issue. I am a strong believer that the brain works in mysterious ways and the improvement she has shown, teaches me that my struggles can easily be defeated if she can overcome this. I have recently signed up for a half marathon hoping to raise money for Katia’s eye condition. I am by no means a runner but if she can do this journey, so can I. 

My mindset has changed tremendously since Katia has been diagnosed and it has made me appreciate life so much more. We are scheduled for follow up in April where we will see if there has been any more progress made. 

I am so blessed to have my girl thriving and healthy, so any added extra is just another blessing.