Skip to main content

An Update on Katia

Following our last post, life with Katia has been a whirlwind! 

At our latest appointment her prescription was changed from +19 to +18 and I remain hopeful. 

She has also started walking! OH MY! She used to crash into everything and walk on her tip toes, so we ordered her first pair of glasses for protection. We have still been patching for 4 hours a day and although, as the days go by it gets a little harder we continue to work toward those 4 hours. 

Katia has learned that if she rips her patch off and sticks in her mouth to get it gooey, we can’t stick it back on!! 

She has also learned to throw things away. Like I said, life with Katia is truly a surprise. She has reached all her milestones and loves to read! 


Despite the fear of living each day wondering how much vision she will get back I know that she is a relentless, smart, vivacious little babe who will conquer anything that is put her way. I do not feel like her vision has affected much of her life, as this is what she knows. She eats (PLENTY), she walks, tries to run and can communicate (especially when she’s hungry) without any issue. I am a strong believer that the brain works in mysterious ways and the improvement she has shown, teaches me that my struggles can easily be defeated if she can overcome this. I have recently signed up for a half marathon hoping to raise money for Katia’s eye condition. I am by no means a runner but if she can do this journey, so can I. 


My mindset has changed tremendously since Katia has been diagnosed and it has made me appreciate life so much more. We are scheduled for follow up in April where we will see if there has been any more progress made. 

I am so blessed to have my girl thriving and healthy, so any added extra is just another blessing. 


Labels:

Comments

  1. AnonymousMarch 4, 2022 at 4:58 AM

    Is poker a good game? - Dr.CMD
    It also seems the casino games are always on 광명 출장샵 the higher level of excitement, 고양 출장마사지 so it makes sense to play 영주 출장안마 at 충청북도 출장안마 the top of the 김해 출장마사지 game,

    ReplyDelete
  2. Mark RuffaloMay 23, 2022 at 3:07 PM

    Your blog contains lots of valuable data. It is a factual and beneficial article for us.ophthalmologist near houston tx Thankful to you for sharing an article like this.

    ReplyDelete

Post a Comment

Popular posts from this blog

Katia is Three and Thriving!

Hello Friends!  I can’t remember where we left off but oh my! Time has flown. Katia is going on three this year (how?!)!  Since we last checked in, her prescription has yet again changed. She was lowered to a +15 and now has glasses with prescription strength to help her see from far away.  We are still aiming to patch 4 hours a day and although somedays are like a hot knife through butter. Other days are like cutting steak with a butter knife.  We traveled recently and it was our first actual “contact and patch” trip. I was SUPER nervous to say the least. We were travelling to Mexico so we wouldn’t have access to any extra contacts if they were to get lost and previously when on vacation, I never had to worry about time. I was able to take a back up contact with us and then ALL the patches. She did so well, and I felt like I almost stressed for nothing. We went swimming and she did great having her contact removed and because we were so busy patching was a breeze....
Post a Comment
Read more

Trust Your Mom Instinct: Scarlett's Discovery Story

Childbirth was a beautiful experience for me. From the moment they cradled Scarlett in my arms after her first bath, we immediately noticed her right eye looked different. We asked the pediatric RN who was taking care of her, the midwife and even my nurse about it. They all said the samething: it was swelling due to birth trauma. In the bliss of the moment, we didn’t question their answers. The pediatrician checked her out a few hours later during rounds and proclaimed all was well. Again, we asked about her right eye. She gave us the same answer we had already received. She was almost sunny side up, it was swelling from birth trauma. Surprisingly, this isn’t that uncommon for births with these conditions. At 27 hours old, Scarlett ended up being sent to the level two NICU in the hospital that I delivered her in. Long story short, she was experiencing pulmonary hypertension. She ended up on oxygen and was constantly monitored. On her second and third days in the NICU, she made so much...
Post a Comment
Read more

Advocating When Nobody Listens

When Arthur was born , we noticed almost immediately that one of his eyes seemed a little swollen shut. He would open one eye and not the other. We asked the doctors about it while we were still in the hospital after his delivery. Our resident doctor assured us that it’s common for babies to have some swelling or similar symptoms, especially when they deliver “sunny-side-up”. The next day during the rounds, we continued to voice our concern over the disproportion and favoritism opening one eye and not the other. The overseeing physician repeated the advice we received already, and to be honest, it’s easy to listen to what you want to hear. Arthur passed all of his tests. I stayed in the room for each one. He aced his APGAR with a 10—crying before even being fully born. Chaos ensued at home , and we enjoyed our time together before making our way home. At his follow-up clinic appointment, we voiced our concerns again—nothing was improving, and we were able to look closer...
Post a Comment
Read more